Brigg's and Al's Run 2014

Please help us support the NICU here at Wisconsin's Children’s Hospital (CHW)

CHW is the reason we had two months with our Dylan.  The doctors and staff here worked to make Dylan comfortable, and to try and find answers.  He had his favorite nurses (Brenda, Laura, and Sue) who he saved his flirty smiles for.  The lactation team of nurses checked in on me daily to help me with pumping and making sure I was able to provide the best nutrition for my baby.  The doctors realized that Dylan preferred some therapy over others, and adjusted the treatment plans based on Dylan's reactions (he preferred one type of ventilator over the other).  The palliative team (Dr Humphrey)  worked hard to allow us to take our baby home and the genetic team (Dr Basel and wonderful Reagan) are helping us try to figure out the how's and the why's.

We also attend a support group that is 100% funded by CHW for families that have lost a child.  It is a great comfort knowing that you are not alone, that someone DOES understand the pain you are going through.  

We wouldn't be where we are today without the staff and programs here at Children's hospital.  Some of you reading this are local here, and may have not had to use the services here, and I hope you never do.  But I hope that you take immense comfort in knowing they are right next door if you ever do need them.

Al's run is September 13th (Saturday) in downtown Milwaukee 

         (starting line by Marquette University)

The run is an 8K, or 5 miles, and the walk is 3 miles.  Please come run and walk with us in support of Children's hospital.  If you can't run/walk, please consider donating and help keep these programs running and helping families in need.

you can sign up or donate here: http://events.chw.org/goto/dylansmom

Here are some videos and stories to show how wonderful CHW is:

This is LuLu and her strength and wisdom amazed me. 

 "I know mom,  Storm Rainbow, Storm Rainbow"